Descripción: This is my personal testimony before the Chronic Fatigue Syndrome Advisory Committee (CFSAC) in May 2008. It is a chartered committee that meets twice yearly, and provides recommendations to the Secretary of Health within the Department of Health and Human Services (DHHS). The committee consists of clinicians who specialize in the treatment of Chronic Fatigue Syndrome (CFS), often times referred...
Duración: 06:15 Min Vistos: 1236 Veces
Descripción: The facts about ME/CFS in this video were taken from many different ME/CFS organizations that are on the Web. ME/CFS can range from mild to severe in patients. It is estimated that 25% of ME/CFS patients suffer from a severe form of the illness and are completely disabled by it. This is a physical illness and is not psychological.
Duración: 03:49 Min Vistos: 4307 Veces
Descripción: Dr Kerr & the 'cure' that never was. No cure had been made available. Not due to Dr Kerr - but due to the blocking of funds to continue his work. (As has happened to Dr Gow) - another genetic expert from Scotland who is also finding things in this illness that people don't want to hear. I wonder why? Not that they have anything to hide or anything, no......
This is an edited (for time) clip of ...
Duración: 09:12 Min Vistos: 11201 Veces
Descripción: A short documentary piece about a girl who lives with severe CFS/ME (chronic fatigue syndrome/myalgic encephalomyelitis) confined to her bed. Found on the Invest in ME website (I think). Note that in the worst cases CFS/ME can get so severe that the person is essentially paralyzed, has to be tube-fed, cannot speak and cannot even tolerate any light or sounds.
I have written a book about CFS/ME/...
Duración: 07:48 Min Vistos: 9286 Veces
Descripción: Dr Lerner describes how a sub-set of (ME CFS CFIDS PVFS) patients may recover with anti-viral therapy: using the drug, Valganciclovir/Valcyte.
Valganciclovir is used to treat cytomegalovirus infections or 'CMV'.
ME CFIDS CFS patients are known to suffer from HHV-6, CMV, EBV viral infections.
Dr Lerner shows an interesting 'slide' showing damage to heart muscle(cardiomyopathy).
It sh...
Duración: 10:53 Min Vistos: 1863 Veces
Descripción: I explain in more depth what is Chronic fatigue Syndrome and how it impacts my life
Duración: 12:50 Min Vistos: 20063 Veces
Descripción: Enjoy the behind the scenes of Adidas´s Sign for Real Madrid campaign.
More information at
adidas.com/realmadrid
Disfruta del "making off" de la campaña de Adidas Firma por el Real Madrid
Más información en
adidas.com/realmadrid
Duración: 02:13 Min Vistos: 44368 Veces
Descripción: Awareness Campaign for Chronic Fatigue Syndrome
4million$ spent by US officials on research for treatment and causes...
Duración: 07:33 Min Vistos: 5427 Veces
Descripción: 1) Family Doctors 'Despise' ME patients and we are 'bluffers'.
2) If a Doctor meets a patient who thinks they have ME - tell them to 'go away you piece of pond life, and pull yourself together'.
3) It is right that people describe Doctors as being 'Disgusted' by ME patients and that we are neurotic.
4) We should feel guilt and shame for having CFS. Brain scans shouldn't be performed becau...
Duración: 10:57 Min Vistos: 1549 Veces
Descripción: A video diary raising awareness about the physical reality of severe ME
Duración: 07:08 Min Vistos: 6401 Veces
Descripción: This MV contains most of his CFs and recent interviews (Bon, Clride). Download: 1. 720X480, 65MB http://
blueseashell.com/mv/dreams.wmv 2. 320X240, 21MB
http://
blueseashell.com/mv/dreams-320.wmv
Duración: 04:25 Min Vistos: 22994 Veces